OCH feeding program discharge!

Tomorrow marks our 13th day of inpatient feeding at Our Children's House AND I'm happy to say we will be released tomorrow morning!  Chance has made amazing progress in the almost two weeks he's been here.  There's definitely been a lot of up and down emotions for myself but Chance has continued to make gains.  Below is a list showing just how good God has been to us since arriving here at the hospital.  Thank you for all your feeding prayers!

1. Chance came in weighing 14.5 pounds and his weight today was 14.9!
2. He passed his swallow study with flying colors ~ NO aspiration= no need for thickened feeds.
3. Chance has gone from nectar thick consistency to thin- normal formula.
4. With the help of two awesome therapists, we found a bottle and nipple flow (Dr. Brown, level 2) that Chance will eat from happily!
5. With the help of his wonderful OT therapist, Chance can now sit UNASSISTED for more than 5 minutes!!!  It's amazing how much strength he's gained working with her 3x a week and me carrying over the skills in between.  She also worked on his pincher and tri-pod grasps.  
6. As far as low muscle tone in his cheek/mouth area, with the bottle he's using, no chin or cheek support is needed.
7. No more fighting feeds- HuGe SuCcEsS!!!
8. Since going on a strict 3 hour feeding schedule, Chance is now showing hunger signs.  He's actually whinne and cryish around feeding times.  Some of you may think that's no big deal, but that's music to my ears that he's showing me he wants to eat.
9. Joc fed Chance today and they both did fabulous = hello 1:30 AM feed for Joc coming right up ;->

Now, I'm praying we can transition back to our house and not backtrack.  We have lots of follow up appointments coming up as well.  Seeing neurology this Wednesday.  Then, follow up with GI, pediatrician (for weight checks), and ENT.

One thing that has helped get me through this is knowing this too shall pass and this time is only temporary.