Tuesday, July 9, 2013

Austin getaway

We escaped to Austin over the 4th of July for a couple days.  It was a much needed break!  We stayed at Barton Creek Resort which was very nice.  We had slim pickins because of the holiday.  We drove around a lot and looked at all the beautiful, monstrous houses (what do those people do for a living anyways?!) and ate A LOT of food!  

Chance took another backslide with his eating last week.  It's extremely taxing for me emotionally when he does that.  He had reached 13 lbs but lost a few precious ounces :-((((  He's been gaining 1 pound a month but hasn't reached the 13 like he should and it's been a month.  So... we will see.  I have felt paralyzed with worry and fear.  I hate having to worry daily (yeah right, more like hourly) over his feeds.  My devo today was over worry, very fitting.  It said when your mind is so clouded with worry, His voice is muffled and therefore I can't hear Him, only white noise.  My prayer is for my mind to quiet.  And Chance's appetite will increase.

He's making good growth with his DOC band.  They are predicting treatment for at least 9 weeks, it's been 2 weeks so far. 

Other than that, Chance is doing great!  He's totally quit rolling over but can almost roll from back to tummy.  He has also started getting his feet by himself!  And everything goes into his mouth!  No teeth yet!  

Also, Chance's apnea monitor download came back fine so we are officially monitor free now!!!!!!!  Yay!!

















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